May 24, 2007
Have You Seen The New Fibromyalgia Magazine?
I just got back from Barnes and Noble with a new copy of the "Fibromyalgia Aware" magazine. What a gold-mine of information. I must have been in a hole somewhere, because it says it is volume 13. I thought it was something brand new.
Anyway, if you can get to B & N or Borders, you'll probably be glad you did… although you may want to call first. This edition of "Fibromyalgia Aware" is from May - August, so it should be on the stands for a while.
It looks like they have a web site at FMAware.org. You can check out some of the information there.
Have a great day!
2 Comments on Have You Seen The New Fibromyalgia Magazine? »
May 25, 2007
Karen @ 6:24 pm:
I have been in pain for 34 years. For all of those years I heard it was Psychosomatic(?) or Stress, etc, etc, etc…Finally this year after raisning cane with my GP, I found out that I have DDD, degenerate disc desease, but I also have Fibro. I know that everyone here has gone through the same things I have, with Doctors as well as family and friends. You get really tired of hearing, "oh, it can't be that bad", or "why don't you want to do anything physical". And when you reply, "because it hurts too much", you're given that "Ya, whatever" look. Sometimes, I'd like to transfer that days pain to the owner of the look, just so they can understand. I know that my constant pain has caused all sorts of problems with friends, family and relationships. It's hard to find someone who will stand by you when you feel so miserable so often.
I hope that through this community I will find some ways to cope.
Karen
September 28, 2007
Karen @ 8:59 am:
Hi
My name is also Karen and I am having a week like many others. I have been diagnosed with FM 10 years ago. I have lost my only income and have very little hope at this point. Many doctors look at FM patients as problem patients. I recently have been in so much pain that my doctor took me off my meds and let me be without meds, her words are "if you are in so much pain then the pills are not working." I am in so much pain and then to have her cancil my appointment and rescedule for another week. I have been to emergency and recieced shots for the pain but they are also looking at me as I am nuts and a seeker of attention. I came across this site today and thought I have nothing to lose, if to only tell some one out there that I am also like you, and keep trying. I am currently fighting for disability and that is costing me mentally,physically and emotionally. I am so full of confusion and frustrations that sometimes I think cancer patients get more pain releif than the people that have FM. I wonder if this syndrome will ever be given the proper term of disease so that we all can be treated with respect and dignity that we so badly need. What a life to try and work through and there is little medical back-up. Thanks for reading my words and thoughts, sitting here in Canada waiting to have a pain free minute. Karen Duncan